For the last decade, I’ve been the producing partner to a wonderful photographer and director named Carolyn Jones. About five years ago, we started a project called “The American Nurse,” which turned into a photography book, a website and a documentary film. We started the project by researching some of the biggest issues affecting our health and healthcare in the U.S. – aging, poverty, war, incarceration – then set out to find nurses working with patient populations most directly affected by those issues. We spent time on a Labor & Delivery unit at Johns Hopkins; with a nun running a Wisconsin nursing home using baby goats and sheep as animal therapy; and at the biggest maximum security prison in the country, where inmates are trained to care for their fellow inmates when they’re dying.
Whether we were speaking to hospice nurses, nurses in an ICU, nurses in the military or in the emergency department of a major hospital, there was one recurring theme: that we’re not dying well in this country. And that even if we can’t change the whole dysfunctional healthcare system, we can at least make small changes and take small actions to regain some control over our end-of-life experience. So, we set out to make a film that would tell the story of patients facing impossibly complex decisions about their care, interwoven with guidance from their nurses.
One of the most consistently surprising things to me has been that people usually want to have their story told. Sometimes I think, wow, there is no way this person is going to agree to letting us film these incredibly intimate aspects of their life. But more often than not, once they know the goals of the project, they come onboard. In “Defining Hope,” one of our subjects agreed to let us film her undergoing brain surgery. And the surgeon agreed. And the hospital agreed. They felt that there was something to be gained by sharing this story with the world and that it might help another patient and family facing a similar scenario.
Without question, my favorite part of my work is interacting with the subjects. I get to talk to people all over the world, from all walks of life. I get a little window into their world and it’s my job to dig in and figure out how best to tell their story. I also get to travel, which I love. Carolyn and I have had amazing experiences all over the world together, from a 13-hour boat ride up the Amazon in Brazil, to a birthday celebration in Malawi; visiting a train station health clinic helping homeless children in Delhi and driving up a creek in the Appalachian mountains that was flooded by top-of-the-mountain coal mining. Sometimes I also have to make spreadsheets and balance budgets. But every job has to have at least some tedium, or else how would we ever appreciate the good stuff?